Cystic fibrosis

Australian Cystic Fibrosis Data Registry


Australian Clinical Registries is the contracted manager of the Australian Cystic Fibrosis Data Registry (ACFDR), for Cystic Fibrosis Australia.  See CFA’s ACFDR web page for published reports and information about the registry.


International CF data


The Cystic Fibrosis Data Network website is a clearinghouse site created and managed by Geoff Sims. It consolidates published statistics from national and regional cystic fibrosis (CF) patient registries and aims to encourage development of international CF data.