Cystic fibrosis

Australian Cystic Fibrosis Data Registry


From 2002 until March 2016 Geoff Sims Consulting Pty Ltd, trading as Australian Clinical Registries, was the contracted manager of the Australian Cystic Fibrosis Data Registry (ACFDR), for Cystic Fibrosis Australia (CFA).  Monash University assumed the management role in September 2016, under contract to CFA. See CFA’s ACFDR web page for published reports from the registry.  For information about the ACFDR and for contact details visit Monash University’s ACFDR web page.


International CF data


The Cystic Fibrosis Data Network website is a clearinghouse site created and managed by Geoff Sims. It consolidates published statistics from national and regional cystic fibrosis (CF) patient registries and aims to encourage development of international CF data.